The SEND Mum Club is a parenting podcast with a difference. Made specifically for parents with children with all kinds of additional needs and/or disabilities. ...
2: Polly Hazlewood: Parenting Twins with a Rare Genetic Condition
In this episode, Polly shares her journey parenting 5 year old twins Fox & Lili Rose who have a genetic condition so rare that no one else in the world has it. We talk about their long stay in the NICU, finding support from others on a similar journey and how important that is, and the resilience her situation has given her.
We discuss learning to stay in the present and the beauty of finding joy in small moments. Polly is really open and honest in this emotional chat, and mentions the book Unique by Melanie Dimmitt and the charity Unique that both really helped her. Links for both are here:
www.rarechromo.org
https://amzn.eu/d/iJvByTW
Tags: motherhood, NICU, twins, IVF, parenting, emotional journey, genetic condition, special needs, ableism
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1: Receiving A Diagnosis of Down Syndrome
Welcome to The SEND Mum Club podcast! In this first episode I talk about my journey after finding out my son Leo has Down syndrome. I reflect on the feelings I had waiting for the test results to come back, the moment we received his diagnosis and the path I’ve been on since.
I’m very honest about the wide ranging emotions I had (and still have sometimes) as I want this podcast to be a safe space for my future guests to open up about all aspects of raising a child with additional needs while also celebrating the absolute joy our children bring us, and the whole new world they’ve opened our eyes to.
This episode is supported by Positive About Down Syndrome, you can find out more about this amazing charity here www.downsyndromeuk.co.uk
Tags: down syndrome, additional needs, diagnosis, trisomy 21, extra chromosome
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The SEND Mum Club Trailer
The SEND Mum Club launches on 21st March. Make sure you're following so the episodes automatically download
The SEND Mum Club is a parenting podcast with a difference. Made specifically for parents with children with all kinds of additional needs and/or disabilities. It's a place to share the joys and challenges of raising children with extra needs, with raw, honest conversations, designed to make you feel seen and heard on a journey none of us expected to be on.