Carolyn Philstrom is an ordained minister in the Evangelical Lutheran Church in America and works as a healthcare chaplain, with experience at both a major academic teaching hospital and in hospice. She lives with her husband Rory and their two children Edan, 7 and Josephine 3. Edan was one of the first humans to be diagnosed with Spinal Muscular Atrophy on the newborn screen in Minnesota and was treated before the onset of symptoms. He is a miracle child, developing without signs or symptoms of SMA. She is an independent rare disease advocate, working to advance newborn genomic sequencing, helping SMA patients in other countries create patient advocacy groups, and assists companies who are dedicated to affordable and accessible gene therapies expand and advance their mission. Carolyn is a proud monthly donor to Genomes2People, Dr. Robert Green's (Harvard University) non-profit working to advance genomic medicine.
Most recent blog about our story (2025)
Blog I wrote for Harvard University (2024)
Speech I gave for Harvard University (2024)
Washington Post article about newborn screening
Bloomberg Article about newborn screening
Dr. Tim McLerran is a physician-turned product leader with a mission to bring human and machine intelligence together in the service of clinical challenges. During a research fellowship at the University of California, San Diego, Tim co-developed methods to rapidly measure the molecular milieu of human blood using mass spectrometry. This exposed him to the massive volume of data in precision medicine, and precipitated a realization that artificial intelligence would have to be a part of medicine in order for us to make full use of the data available for each patient. As an entrepreneur and product leader, Tim has developed and deployed systems which provide AI support to clinicians in diagnosis, management, documentation, and patient communication. He is dedicated to the quadruple aim of healthcare, practices user-centered design, favors lean and agile methods of software development, and actively advocates for the ethical principles laid out by the American Medical Association in their November 2024 statement "Augmented Intelligence Development, Deployment, and Use in Health Care.