318. Diving Deeper: Trauma and Intellectual Disability
Last week we sat down for an interview with trauma expert Dr. Karyn Harvey and today the three of us are unpacking all of our feelings about it. We’re asking ourselves some pretty heavy questions about trauma and intellectual disability.Do our kids really encounter trauma every time they step out the front door?Are we holding our children to unrealistic standards and expectations for behavior?Do the benefits of an inclusive education outweigh the trauma that comes with it?Why have our kids never been offered mental health support at any of their regular screenings?Here’s what we know for certain: our children with intellectual disabilities understand when they are being excluded. And it’s our job to remind them just how incredibly lucky this world is to have them in it. Friends, we hope your children receive the mental health support they need so they can become exactly who they are meant to be.SHOW NOTESLearn more from Dr. Karyn Harvey and read her publications here. SPONSORSign up for Enable SNP HERE.
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317. Brain Health & DS: Trauma and Intellectual Disability w/Dr. Karyn Harvey
Dr. Karyn Harvey is a psychologist, author, trainer, speaker, and EXPERT in the field of psychology, intellectual disability, and trauma. Have you ever thought of the trauma that individuals with intellectual disabilities face each day? The examples are endless.. a negative diagnosis experience, being excluded, or even being placed in an institution. Today Dr. Karyn Harvey is on the show to teach us:How does trauma influence behavior? What do symptoms of trauma look like in people with intellectual disabilities?Can we assume that all individuals with intellectual disabilities face trauma?What does therapy look like for an individual with an intellectual disability?We’re also breaking down a few real-life examples of incidents in our child’s lives. This episode is full of wisdom for all of us who wish to support individuals with disabilities and their mental health.---SHOW NOTESLearn more from Dr. Karyn Harvey and read her publications here. SPONSORSign up for Enable SNP HERE.JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!Â
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316. Diving Deeper: Alzheimer's Disease Prevalence and Treatment, w/Kandi Pickard
Last week we had an important conversation with Dr. Michael Rafii all about the link between DS and Alzheimer’s disease. If you’re still processing everything you learned from that interview, that’s okay. Sit down with the three of us + our good friend Kandi Pickard (CEO of the National DS Society) and we’ll talk through it together!How do we confront medical discrimination?Where can we get involved in research?What does it mean that the NDSS has merged with LuMind? (hint: its a great thing for Alzheimer’s research!)We know this isn’t an easy topic but this episode is full of hope. Remember, there are medical experts (like Dr. Rafii) and organizations (like NDSS) doing all that they can to improve the future for your loved one with Down syndrome.--SHOW NOTESLearn more more about Alzheimer’s disease from the National DS SocietyLearn more about LuMind merging with the NDSSFind resources on The Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS)Get involved in research with DS-ConnectSPONSORSign up for Enable SNP HERE.
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315. Brain Health & DS: Alzheimer's Disease Prevalence and Treatment (w/Dr. Michael Rafii)
As we continue this season on brain health, its time to dive deep into the link between Alzheimer’s disease and Down syndrome. It’s not an easy topic.. and that’s why we are so grateful to have Dr. Michael Rafii with us. He’s a physician-scientist whose research focuses on developing treatments for Alzheimer’s disease, including a genetic form that occurs in people with Down syndrome. Dr. Rafii is breaking down these topics today:Alzheimer’s 101: How does it progress over time? How many people with and without DS are likely to develop Alzheimer’s disease?The science: What gene is responsible for causing Alzheimer’s? Current breakthroughs: More people with DS are involved in the research and Dr. Rafii is focused on developing research methods that work for individuals with intellectual disabilities. Take some notes, friends. This is an important one. SPONSORSign up for Enable SNP Today HERE.
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314. Diving Deeper: Motor Planning, Apraxia, & More
Last week, we heard from motor planning expert, Brooke Poston, so today the three of us are diving deep into our experiences of apraxia with our own children! Here’s what we’re chatting about:When are children aren’t cooperating, is it actually a behavior problem or an apraxia challenge? Do they need ABA therapy or motor coaching? How can we implement these motor planning techniques all day every day?Knowing what we know now, how can we offer more grace to our children when they appear dysregulated and/or uncooperative? Make sure you listen to last week’s episode with Brooke first so you understand the basics of motor planning and apraxia before we dive into our personal examples!---SHOW NOTESListen to last week’s episode with Brooke Poston for more information on motor planning.Follow Spellers & Brooke on Instagram!Visit spellers.com for more information. JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!Â
Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.
New Zealand