Today we’re talking about the people and places where we can keep our shoulders down and know that our children with Down syndrome will be accepted no matter what. Join us as we chat about:Our stories of how we first connected with the DS communityOnline connections vs in-person connections (Why does this one feel so much harder sometimes?)Why is it important to build relationships with other families in this space?We’re so grateful for organizations like the Down Syndrome Diagnosis Network (DSDN) who make connections between families based on age, location, culture, and more. If you’re searching for community, let the DSDN app be your first step.SHOW NOTESLearn more about the Down Syndrome Diagnosis NetworkJoin a DSDN group online or locallyDownload the DSDN appFind a GiGi’s Playhouse near you SPONSORS National Down Syndrome SocietyiCanShine ProgramsDown for GreensRods Heroes
--------
37:26
--------
37:26
309. Myofunctional Therapy for Individuals w/Down Syndrome (ft. Irene Iskander)
Having a child with Down syndrome means you’re always learning about something new! And today’s topic is: oral facial myofunctional therapy.. a technique used to improve the way our mouth and face muscles work! We have Irene Iskander (dental hygienist + lucky mama) on the show today to answer all of our questions:Why is mouth breathing so common amongst individuals with DS? What are the long term effects of mouth breathing?What can we do at each age to strengthen mouth and facial muscles?How is myofunctional therapy different than speech therapy or feeding therapy?We didn’t realize how important this information was until we chatted with Irene! So tune in and take notes, friends!SHOW NOTESFollow Irene @fityourface_ on InstagramListen to 28 Reasons to Nasal Breathe from Ask The Dentist podcastSPONSORSNational Down Syndrome SocietyiCanShine ProgramsDown for GreensRods HeroesJOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
--------
33:13
--------
33:13
308. A Conversation About The Telepathy Tapes Podcast
Friends! Have you listened to The Telepathy Tapes Podcast? In this show, creator and host Ky Dickens explores the “profound abilities of non-speakers with autism - individuals who have long been misunderstood and underestimated.” Let’s talk about it:Have we experienced a shared consciousness with our own children? Is telepathy possible?Why are people having such a hard time believing the stories from the autistic individuals and their families who claim to communicate with telepathy?How has the disability community responded to the show?We don’t know a lot for certain, but we do know this: Our children have shifted our paradigm and opened us up in ways we cannot explain. And we value the stories of non-speaking autistic individuals who communicate with OR without telepathy. Go ahead and listen to The Telepathy Tapes and let us know what you think!-- SHOW NOTESListen to The Telepathy Tapes PodcastSPONSORS National Down Syndrome SocietyiCanShine ProgramsDown for GreensRods HeroesJOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
--------
46:21
--------
46:21
307. Sid Ghosh on Disability, Connectivity, & His New Book of Poetry!
Sid Ghosh is 18 (going on 81) years old and he just published his first full length book of poems with a major poetry company. He’s been given extraordinary praise from renowned authors, and us too of course! Here’s what we’re talking about today: Sid’s poems about his profound experience the world, as an autistic adult who has Down syndrome and uses a communication board (Spellers style!)Why it’s important to challenge our comfort zones to get a glimpse into a more fully profound way to be human. What the publishing process was like + where and when you can BUY this book! There’s a lot of talk about energies, frequencies, and connectivity in this one too. We hope you join us for this incredible interview with Sid Ghosh, and his mother, Dr. Vaish Sarathy! --SHOW NOTESPurchase Yellow Flower Gills Me Whole by Sid GhoshFollow @downlikesid on InstagramSubscribe to Sid’s stubstack newsletterSPONSORS National Down Syndrome SocietyiCanShine ProgramsDown for GreensRods HeroesJOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
--------
49:45
--------
49:45
306. What Is Ableism and How Do We Call It Out?
Oxford Dictionary defines ableism as: “discrimination in favor of able-bodied people.” And on today’s episode, we’re defining ableism with our own examples:When someone is shocked by our child’s capabilitiesWhen someone is suprised by our strong connection to our childrenWhen someone volunteers for a disabilities organization believing they’re a heroA lot of ableism is just actions and systems that we may have never questioned.. until being affected by disability. So what do we do when we experience ableism in our communities? Lets unpack it in this week’s episode. SHOW NOTESFollow @open_future_learning on Instagram!Follow @ndss on Instagram!Follow @shaneburcaw on Instagram!Disability Euphemisms video from @blairimani Listen to 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya LalvaniSPONSORS National Down Syndrome SocietyiCanShine ProgramsDown for GreensRods Heroes
Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.
New Zealand