The Lucky Few

• 316. Diving Deeper: Alzheimer's Disease Prevalence and Treatment, w/Kandi Pickard

  Last week we had an important conversation with Dr. Michael Rafii all about the link between DS and Alzheimer’s disease. If you’re still processing everything you learned from that interview, that’s okay. Sit down with the three of us + our good friend Kandi Pickard (CEO of the National DS Society) and we’ll talk through it together!How do we confront medical discrimination?Where can we get involved in research?What does it mean that the NDSS has merged with LuMind? (hint: its a great thing for Alzheimer’s research!)We know this isn’t an easy topic but this episode is full of hope. Remember, there are medical experts (like Dr. Rafii) and organizations (like NDSS) doing all that they can to improve the future for your loved one with Down syndrome.--SHOW NOTESLearn more more about Alzheimer’s disease from the National DS SocietyLearn more about LuMind merging with the NDSSFind resources on The Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS)Get involved in research with DS-ConnectSPONSORSign up for Enable SNP HERE.

  --------  

  46:42

  --------

  46:42
• 315. Brain Health & DS: Alzheimer's Disease Prevalence and Treatment (w/Dr. Michael Rafii)

  As we continue this season on brain health, its time to dive deep into the link between Alzheimer’s disease and Down syndrome. It’s not an easy topic.. and that’s why we are so grateful to have Dr. Michael Rafii with us. He’s a physician-scientist whose research focuses on developing treatments for Alzheimer’s disease, including a genetic form that occurs in people with Down syndrome. Dr. Rafii is breaking down these topics today:Alzheimer’s 101: How does it progress over time? How many people with and without DS are likely to develop Alzheimer’s disease?The science: What gene is responsible for causing Alzheimer’s? Current breakthroughs: More people with DS are involved in the research and Dr. Rafii is focused on developing research methods that work for individuals with intellectual disabilities. Take some notes, friends. This is an important one. SPONSORSign up for Enable SNP Today HERE.

  --------  

  44:08

  --------

  44:08
• 314. Diving Deeper: Motor Planning, Apraxia, & More

  Last week, we heard from motor planning expert, Brooke Poston, so today the three of us are diving deep into our experiences of apraxia with our own children! Here’s what we’re chatting about:When are children aren’t cooperating, is it actually a behavior problem or an apraxia challenge? Do they need ABA therapy or motor coaching? How can we implement these motor planning techniques all day every day?Knowing what we know now, how can we offer more grace to our children when they appear dysregulated and/or uncooperative? Make sure you listen to last week’s episode with Brooke first so you understand the basics of motor planning and apraxia before we dive into our personal examples!---SHOW NOTESListen to last week’s episode with Brooke Poston for more information on motor planning.Follow Spellers & Brooke on Instagram!Visit spellers.com for more information. JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! 

  --------  

  43:49

  --------

  43:49
• 313. Brain Health & DS: Motor Planning, Apraxia, & More w/Brooke Poston

  Have you ever found yourself asking your child to do the same thing over and over again? Why won’t they just stand up and put their shoes on? Why do they hit so often for what seems like no reason? Today is your crash course in motor planning and apraxia, where we’re diving deep into how the brain + body connection impacts behavior. We have Brooke Poston (Clinic Director and Spellers Method Practitioner) on the show to answer all of our questions:What is the difference between apraxia, incompetence, and defiance? How can a parent implement motor coaching techniques for children with DS? (hint: Start with the eyes! Use the motor coaching formula)What should we do when our kids “flop and drop?”How do we respond to injurious and out of control behaviors? Get ready to take notes and pass this one along! --SHOW NOTESFollow Spellers & Brooke on Instagram!Visit spellers.com for more information. Learn more about motor planning from Elizabeth Torres and Dana JohnsonJOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! 

  --------  

  42:38

  --------

  42:38
• 312. Ellie Goldstein On Celebrity Dance Competition

  Ellie Goldstein is the first person with Down syndrome to ever be on the cover of British Vogue. She’s also the first person with DS to ever be on the show, “Strictly Come Dancing” — basically UK’s equivalent of “Dancing With The Stars!” Naturally, the internet has A LOT of opinions about it. Today we’re diving into a Facebook post full of ableist comments disguised as empathy. And we’re wondering: Would these comments be made about a celebrity without an intellectual disability?What is the difference between supporting someone with DS and infantilizing them? How do we change people’s minds about this? This is a good one, friends! We’d love to hear what you think! --SHOW NOTESFollow Ellie on Instagram!JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

  --------  

  40:55

  --------

  40:55

More Kids & Family podcasts

Trending Kids & Family podcasts

About The Lucky Few