Let's Talk About The POTS life

Living with chronic pain, hypermobility, POTS, or other complex conditions can make it difficult to connect the dots. In this episode, I sit down with Dr. Linda Bluestein, a board-certified physician specializing in connective tissue disorders, to discuss the connections between hypermobility, Ehlers-Danlos syndrome (EDS), POTS, mast cell disorders, and chronic pain.
Dr. Bluestein shares her personal journey, why these conditions are so often missed, common misconceptions, and practical strategies for improving quality of life. We also discuss her MEN'S PMMS framework and the importance of individualized, patient-centered care.
Whether you're newly diagnosed, supporting a loved one, or a healthcare professional looking to better understand these conditions, this conversation offers education, validation, and hope.
Connect with Dr. Linda Bluestein:
Website: https://www.hypermobilitymd.com
Instagram: @hypermobilitymd
Podcast: Bendy Bodies with Dr. Linda Bluestein

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Facebook: The POTS Life
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Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires consistent lifestyle changes over time.
In this episode, we talk about the emotional side of life after diagnosis, including grieving your old life, learning to let go of constantly pushing through, and building a support system that truly understands what you're going through. We also discuss practical strategies for focusing on what you can control, including hydration, electrolytes, gradual exercise, and creating habits that support long-term improvement.
If you're newly diagnosed or still learning to navigate life with POTS, this episode is a reminder that you're not alone and that while the journey isn't easy, it can get better.

Connect with Us:
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Facebook: The POTS Life
Instagram: @thepotslife_
Tik Tok: thepotslife

Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.
In this episode of Let's Talk About the POTS Life, Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world.
Together, they discuss:
Dr. Seeley's personal journey with POTS
Why so many patients are dismissed or misdiagnosed
The connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobility
Why women with POTS often face unique challenges in healthcare
Why we're experiencing an "epidemic of recognition," not an epidemic of POTS
The future of POTS research, advocacy, and patient care
Whether you're newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate.
Learn more about the Australian POTS Foundation: https://potsfoundation.org.au

Connect with Us:
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Facebook: The POTS Life
Instagram: @thepotslife_
Tik Tok: thepotslife

How do you start trusting your body again after a POTS diagnosis?
In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings and travel to summer events and driving, they discuss practical ways to prepare, pace yourself, and build confidence as your body changes and improves.
They also dive into the connection between POTS and anxiety, why progress isn't always linear, and how small wins can help you regain trust in yourself over time.
Whether you're newly diagnosed or further along in your journey, this episode is a reminder that fear doesn't have to make the decisions.

Connect with Us:
⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠
Facebook: The POTS Life
Instagram: @thepotslife_
Tik Tok: thepotslife

What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility?
In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patient living with hEDS and dysautonomia. We discuss the overlap between POTS, EDS, chronic pain, fatigue, GI symptoms, and why so many patients struggle to find answers.
We also talk about recognizing early signs of hypermobility, building the right healthcare team, advocating for yourself, and why validation matters when living with a complex chronic illness.
Whether you're a patient, parent, or healthcare provider, this episode offers practical insights and hope for navigating the journey.
Follow Dr. Solomon: @thebendypediatrician
Learn More: https://thebendypediatrician.com/

Connect with Us:
⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠
Facebook: The POTS Life
Instagram: @thepotslife_
Tik Tok: thepotslife

Timestamps
00:00 Introduction
03:16 Living with hEDS & Dysautonomia
05:43 Early Signs of Hypermobility in Children
10:36 Understanding EDS & Hypermobility
12:14 Pain, Fatigue & Invisible Illness
22:32 The Connection Between POTS & EDS
23:22 Why Patients Need a Healthcare "Quarterback"
28:58 GI Symptoms, Dysmotility & EDS
31:51 The Importance of Validation
33:51 Building the Right Care Team
36:33 Tips for Advocating for Yourself
41:40 The UVA EDS & Hypermobility Clinic
46:05 Advice for Newly Diagnosed Patients
47:20 Finding Hope