2 Parkies in a Pod: a Parkinson's Podcast

• Lucy’s Genetic Journey: My Amazing Parkinson’s Story

  In this episode, we meet Lucy (not her real name), who shares her extraordinary Parkinson’s journey.Lucy discovered she has a genetic form of Parkinson’s known as LRRK2. What started as a simple Ancestry DNA test to explore her family roots soon led to life-changing revelations — uncovering far more than she ever expected.Before releasing this episode, we sought advice from Lucy’s counsellor, and we’ve taken every step to protect the privacy of everyone involved in this remarkable story.If you’ve been affected by the topics discussed, or want to learn more about genetic Parkinson’s, you can contact the Parkinson’s UK Helpline for confidential advice and support:📞 0808 800 0303📧 [email protected] Conceived Supporthttps://donorconceiveduk.org.uk (peer led support)https://www.uhliverpool.nhs.uk/services/service-finder/donor-conceived-register (national register)EJS ACT PD Get Involved https://www.ejsactpd.com/Watch 2 Parkies at Par-Conhttps://youtu.be/H7IFQfcp2osNeuro Heroeshttps://www.neuroheroes.co.uk/Parkinson’s Europe Work Surveyhttps://parkinsonseurope.org/parkinsonslife/careers-cut-short-financial-loss-and-fear-of-stigma-new-survey-working-with-parkinsons/Parkinson’s UK Nurse appealhttps://www.parkinsons.org.uk/donate/donate-great-careNeuralinkhttps://www.ucl.ac.uk/news/2025/oct/first-uk-patient-uses-thought-control-computer-hours-after-neuralink-implanthello@2parkiesinapod.com

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• Live from Par-Con: Rise & Shine

  10 Tips for a Better DayYou can watch this episode at:https://youtu.be/H7IFQfcp2osIn this special live episode from Parkinson’s UK’s Par-Con event in Birmingham, Kuhan and Dave are joined by a buzzing audience of more than 1000 people in person and online and the incredible Laura Douglas, neuro physiotherapist and founder of Neuro Heroes.Laura shares her expert advice from getting out of bed, stretches for dystonia and tips for getting dressed.Packed with practical tips, uplifting moments, and plenty of fun, this episode will help you start and end each day feeling stronger, steadier, and more confident — no matter what.Neuro Heroes TipsPlus a couple of special announcements.Subscribe to 2 Parkies in a Pod

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• Special Episode: Is Parkinson's on the Rise?

  A new study published today reveals a worrying trend: there are now 166,000 people in the UK living with Parkinson’s but a further 21,000 are estimated to be undiagnosed.. and unsupported.The Parkinson's UK study, the largest of it's kind, also reveals more than a third (36%) were of working age when diagnosed.Separately the number of people with a more complex form of Parkinsonism (e.g. Lewy Body Dementia, MSA, PSP) has increased to 28,000.The study also finds stark differences in rates based on ethnicity.Even more concerning, in some parts of the country people are waiting up to five years to see a neurologist. The charity has called it a “Parkinson’s diagnosis crisis.”With someone in the UK diagnosed every 20 minutes, we ask: why are the numbers rising, what’s driving the crisis, and what needs to change?Join us as we dig into the data, with 3 experts from Parkinson’s UK and explore what this means for the Parkinson’s community — now and for the future.For more information:Parkinson's UK News Article:https://www.parkinsons.org.uk/news/thousands-are-living-parkinsons-undiagnosed-and-unsupported-our-new-research-findsRead the Parkinson's UK Research Blog:https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-what-do-we-knowParkinson's UK Statistics:https://www.parkinsons.org.uk/about-us/parkinsons-statisticsResearch Paper:https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mdc3.70368www.parkinsons.org.ukUK Helpline 0808 800 0303Join the Research Support Network:https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-research-support-networkhttps://www.parkinsons.org.uk/research/race-equality-researchJoin the Black, Asian, Arab and Mixed Heritage Support Group:https://localsupport.parkinsons.org.uk/activity/black-asian-arab-and-mixed-heritage-support-group-meetingListen to Will I Die from Parkinson's:https://www.2parkiesinapod.com/podcast/episode/1e8a6b26/will-i-die-from-parkinsonshttps://ourfuturehealth.org.uk/

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• Call the Parkinson's Nurse

  In this episode, we’re joined by specialist Parkinson’s nurse Becky Heslop, who recently starred in a film highlighting the vital role nurses play in supporting people living with Parkinson’s. Becky talks us through what a Parkinson’s nurse actually does, from being a key part of your care package, to offering advice, reassurance, and hands-on treatments. We hear about some of the more practical – and sometimes challenging – aspects of her work, including giving Botox injections and helping people manage the Produodopa pump. Please consider donating to the Nurse appeal at:https://www.parkinsons.org.uk/donate/donate-great-care

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• Episode 50 - The Best Bits!

  We’ve hit a huge milestone – 50 episodes, and 2 Parkies in a Pod is celebrating in style!In this special edition, we take you back through some of our most memorable moments:✨ The inspiring Matt Eagles, who’s been living with Parkinson’s for more than 50 years, shares how he stays positive.✨ Professor Tom Foltynie answers your questions at Queen Square and explains how to prepare for your consultation.✨ From Episode 20, Canadian broadcaster Harry Forestell tells us what it was like to meet Michael J Fox.✨ Dementia expert Rimona Weil on why she fell in love with neuroscience.✨ The Top 10 symptoms✨ Plus - The moments when things didn’t go quite to plan – including that fit of the giggles!

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