The Waiting Room Revolution

In this episode, Hsien and Sammy talk with RN and project director Kira Goodman and pediatric palliative care physician Dr. Dave Lysecki about what makes pediatric palliative care unique, why it’s not “too sad,” and how early, family-centered support can transform the journey for children with serious illness. They also explore the creation of Canada’s Pediatric Palliative Care Alliance and its efforts to build a unified, equitable approach to care across the country. Learn more about the Alliance here: https://www.pediatricpalliativecare.ca/ 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien and Sammy chat with Sunny Brouse. Sunny was diagnosed with ALS over a decade ago and leads a global community of young women with ALS. We talk about her long, disorienting road to diagnosis, what clinicians miss when they focus on function over quality of life and how dark humor, planning ahead and honest talk can protect hope. Learn more about Sunny's journey here: https://sunnystrong.com/ 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien and Sammy sit down with Barbara MacLean, Executive Director of Family Caregivers of British Columbia and a leading voice for caregivers in Canada. Barbara shares her powerful origin story from supporting children with disabilities in grade six to becoming a national change agent for family and friend caregivers. We also chat all things caregivers, including visibility and distress and ways to combat both. To learn more about Barbara's work visit: https://www.familycaregiversbc.ca 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien chats with Ella Tan, an Employment and Family Support Worker and Caregiver Advocate. They chat about the hidden realities of paid care providers in Canada including immigration hurdles, debt, family separation, and the blurred boundaries of working in employers’ homes. Ella shares how community networks, settlement supports, and policy change can transform not only caregivers’ lives but the quality and dignity of care for everyone. Check out Ella's podcast here: https://open.spotify.com/show/3FjXuS9QV9zxyEI4lhHYHT 

 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien and Sammy chat with Dr. Myles Sargeant, family physician and planetary health expert. We chat about how healthcare can reduce its environmental footprint with delivering better care, heat islands and why home based palliative care is one of the greenest things we can do. Learn more about Myles work here: https://greenhealthcare.ca/ 

 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0