Empowering Patients Through Research ft. Wes Michael
In this episode, we are joined by Wes Michael, the founder and president of Rare Patient Voice, who discusses the importance of including patient voices in healthcare decisions.Rare Patient Voice connects patients with researchers and companies for interviews and studies, compensating them for their time and insights. Wes shares his background in market research and the experience that led him to create Rare Patient Voice. The discussion highlights the shift towards patient-centricity, the unique experiences of patients with both rare and non-rare conditions, and the challenges faced by caregivers. Wes also explains the various ways patients can participate, emphasising the importance of reaching diverse populations and ensuring inclusivity in research. Interested individuals are encouraged to visit the Rare Patient Voice website to learn more and get involved. You can also find them on Facebook and LinkedIn.Follow the HOST:https://linktr.ee/JoelvsarthritisJoin our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
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40:10
Being a Children's Occupational Therapist with Juvenile Arthritis ft. Amy Wescott
Friend of the show, Amy Wescott, a children's occupational therapist living with juvenile idiopathic arthritis, returns to the Chronic Pain Club after her first interview with us went on to receive thousands of views.We discuss Amy's journey to becoming an occupational therapist [12:16], her experience living with arthritis [15:48], the challenges she faced [22:18], and how her personal experience has influenced her career [27:01]. Amy also talks about occupational therapy [34:36], her research [39:31], and the Children's Chronic Arthritis Association (CCAA) [48:15].Follow the HOST:https://linktr.ee/JoelvsarthritisJoin our Online Peer Support Community and Discord server here:https://discord.com/invite/dUean4vDcXWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
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48:04
Why I Volunteer ft. Angela Laborde
Angela Laborde, who lives with psoriatic arthritis, among other conditions, returns to the show to share with us why she volunteers and plays an active role in peer support communities online.In Part 1 (https://open.spotify.com/episode/5KH7EINV5kCI4fK618ngX7?si=3afPdtoRQm-zAkqRkm0hag), we discussed Angela's journey to diagnosis with multiple chronic and autoimmune conditions, the challenges she overcame to get those diagnoses and the daily impact that has had on her.In this bonus second episode, we discuss her volunteering work, how she helps others, why it's important, and how volunteering can help you cope with your health challenges.Follow our GUEST:https://www.instagram.com/a_schiro/Follow the HOST:https://linktr.ee/JoelvsarthritisJoin our Online Peer Support Community and Discord server here:https://discord.com/invite/dUean4vDcXWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
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45:31
The Challenges and Impact of Psoriatic Arthritis ft. Angela Laborde
Filmed live between World Arthritis Day and World Psoriasis Day, we are joined by special guest Angela Laborde, an American who lives with psoriatic arthritis, among other conditions.In Part 1, we discuss Angela's diagnosis journey with multiple chronic and autoimmune conditions, the challenges she overcame to get those diagnoses and the daily impact that has on her. We also touch upon the vital role that community and advocacy play in her life now.Come back for Part 2, where we will also discuss her volunteering work, how she helps others, why it's important, and how volunteering can help you cope with your health challenges.If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3Follow our GUEST: https://www.instagram.com/a_schiro/Follow the HOST:https://linktr.ee/JoelvsarthritisJoin our Online Peer Support Community and Discord server here:https://discord.com/invite/dUean4vDcXWatch The Chronic Pain Club Talk Show and these interviews LIVE onYouTube and join the conversation!DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
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47:33
Psychological Techniques for Managing Psoriasis ft. Dr Catherine O'Leary
Dr Catherine O'Leary, a Clinical Psychologist and person living with psoriasis, joins the Chronic Pain Club Talk Show to provide invaluable insight into the psychology of psoriasis.
With her extensive training in Cognitive Behavioural Therapy, Family Therapy and Interpersonal Psychotherapy, Catherine brings a wealth of expertise to our discussion.
We learn about her personal experiences living with psoriasis, her work as a clinical psychologist, and techniques you can use to manage psoriasis. We also discuss her new book, Coping with Psoriasis, and how she hopes it can help.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
https://copingwithpsoriasis.com
Follow the HOST:
Socials & Links: https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality.
Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) in front of a LIVE audience on our YouTube Channel here: https://youtube.com/joelvsarthritis.
New Zealand