The Parkinson's Experience podcast

• 118 FREE Parkinson's Wellness in Austin & Online

  Where do you exercise? Is there a place you can take classes specific for people with Parkinson’s? Is it convenient? I know of only a handful of cities where there is a one stop fits all approach to PD wellness. Most are created and managed by someone stepping up and doing the work to make it happen for their community and beyond. I am excited to highlight some of these magical places where people with Parkinson’s take classes designed for their needs, provide social support, and community. I am thrilled to bring. you this first magical place. It is in the greater the Austin, TX area and on their YouTube chamnnel. Power For Parkinson’s was founded by two women, Dr. Nina Mosier and Susan Stahl. They both had fathers with Parkinson’s and saw a need, so they found a way to provide research-based exercises while offering them for FREE. With nine locations, the classes are very accessible. Add in the YouTube channell with available streaming and on demand videos all for free, well that is magical. After listening to my guest today, you are going to want to have a similar opportunity in your area as well. Listen on. https://www.powerforparkinsons.org/ https://www.powerforparkinsons.org/youtubeq https://www.dbsandme.com/17branches Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson’s disease at https://DBSandMe.com/17branches   

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• 117 Why We Struggle with Sleep

  Do you have trouble falling asleep, staying asleep, getting enough sleep? Well, you are not alone. It seems lack of sleep is an epidemic in the US. In particular, getting a restful night’s sleep is very difficult for the majority of people with Parkinson’s.  Why? What is going on and how can we improve our the quantity and quality of our sleep? This is a meaty topic to tackle. It is very important to understand it and make changes to improve your situation. Luckly, we were able to get a highly qualified expert on sleep disorders with experience helping people with Parkinson’s. Dr. Joyce Lee-Ianotti is fantastic and speaks in layman terms so we can understand the information. If you have sleep problems or if you know someone who does whether you are a person with Parkinson's or not, this is the episode for you. https://dbsandme.com/17branches https://aasm.org/  for more information and to find a sleep specialist close to you. https://www.thensf.org/. Another resource https://www.barrowneuro.org/person/joyce-k-lee-iannotti-md-faan-faasm/. Our guest expert

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• 116 Smell Loss and the Brain

  Did you know there is a connection between loss of smell and Parkinson’s disease? In fact, it may turn out to be a predictor of the disease up to 10 years before a clinic diagnosis of PD.  Here are some interesting stats: ·          100% of major brain disorders are associated with smell loss ·          96% of newly diagnosed people with Parkinson’s have lost some ability to smell ·          70% of people living with smell loss don’t know it until they are tested ·          50% of people over the age of 60 may be living with smell loss I am fortunate to have spoken to a leader in the research of smell loss, Dr. Richard Doty. We had a fascinating discussion on smell loss and what it can mean for those suffering including a loss of taste which may lead to weight loss. Additionally, we chatted about the work the MJFF is doing with its landmark smell loss study through the PPMI program. Using Dr. Doty’s scratch-and-sniff test, PPMI hopes to help scientists learn more about this risk factor for PD. I’ve taken it twice. I don’t think I passed it. https://www.michaeljfox.org/smell-loss-brain-health-request-your-smell-test https://mysmelltest.org/mjffbsd https://sensonics.com/product/smell-identification-test/ https://www.dbsandme.com/en.html  

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• 115 Make Your Voices Heard: Ban Chemicals that Cause Diseases

  This is a very important topic and one in which you can make a difference. Our environment is sickening the population. Parkinson’s disease is one example of a condition that likely was caused by pesticides and other toxic chemicals in our water, food, air and soil. All of us can contribute to preventing future generations from getting Parkinson’s and other diseases. Those already diagnosed may benefit as well. If we avoid these chemicals now, we may slow the progression of the disease just as exercise has been proven to do so. Bottom line: we need to work together to get these destructive chemicals banned forever. I spoke with Dr. Ray Dorsey on this topic. He and his colleagues have been sounding the alarm on all the ways certain chemicals are causing the increase in PD cases all over the world. Their first book, “Ending Parkinson’s”, started the conversation on preventing and treating the disease. In their new book, “The Parkinson’s Plan”, there is specific plan for each person or community to follow in order to live a healthier life and advocate for change to help prevent future generations from suffering due to exposure to these toxic substances. Listen on to hear Dr. Dorsey’s passion and efforts to ban harmful chemicals still being used in our communities. Let's make our voices heard and advocate to ban pesticides and harmful chemicals. https://pdplan.org/ https://www.michaeljfox.org/news/national-plan-end-parkinsons-act-makes-progress-congress https://www.atria.org/ [email protected] (Dr. Dorsey's email address) https://www.congress.gov/members/find-your-member https://www.dbsandme.com/en.html  

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• 114 World's Toughest Row - a story of endurance, strength and friendship

  $41M, 41 days, 2800 miles. Those are the stats for Team Human Potential who competed in the World’s Toughest Row. The boat race happens annually and showcases teams of four, rowing across the Pacific Ocean from California to Hawaii. Patrick Morrisey with Team Human Potential became the first person with Parkinson’s to finish the race. They raised over $41M for the Michael J Fox Foundation for Parkinson’s research. Amazing. We spoke with Patrick and his skipper, Brendan Cusick about their experiences, challenges, commitment, and learnings on the trip. What did it reveal about working together and becoming close brothers in the end? How did Patrick manage his symptoms while rowing and living on a small boat for 41 days? What did they learn about their mental and physicial limitations? What’s next? Listen on to enjoy some time with this engaging, generous and courageous team. https://humanpoweredpotential.org/ https://www.dbsandme.com/en.html 

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