Powered by RND
PodcastsHealth & WellnessThe Parkinson's Experience podcast

The Parkinson's Experience podcast

Sheryl Lowenhar
The Parkinson's Experience podcast
Latest episode

Available Episodes

5 of 124
  • 125 From Vision to Impact: Growing a Parkinson's Wellness Network
    This year I have been highlighting some of local areas in the U.S. where people with Parkinson's take classes designed for their needs, provide social support, and community. It is truly magical to have this kind of central location just focused on your needs as a person with Parkinson's. If this exist in your area, like Power for Parkinson's in Austin and my guest today from Parkinson's Body & Mind in Connecticut, please take advantage of it.  Exercise is the only proven way to slow the progression of the disease. Let's exercise and build a community together. Lynn Hagerbrant is the co-founder of Parkinson's Body & Mind. It is a not-for-profit organization that provides exercise classes in partnership with local YMCAs and now offer them virtually.  They have a speaker series, support groups and mentorships. It is a one stop shop for PwP and their care partners. Most this is free for the PWP and their care partner removing a barrier for some to access these kinds of wellness programs. Learn more by listening to this conversation with Lynn. How might you form a similar organization in your part of the country to provide valuable classes and a greater sense of community? https://www.parkinsonsbodyandmind.org/ https://www.dbsandme.com/17branches  Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson's disease at https://DBSandMe.com/17branches   
    --------  
    29:26
  • 124 Magic with a Parkinson's Sleight of Hand
    Who doesn't like magic tricks? I love watching magicians trying to surprise the audience with their slight of hand tricks. Always fascinates me and asking how do they do that. What does this have to do with the Parkinson's Experience? Well, my guest today turned to learning magic after he was diagnosed with PD and could no longer work as a nurse. Although his main symptom is bradykinesia or slowness of movement, he is able to perform magic with a little help from getting Deep Brain Stimulation surgery. He performs and has recruited a community of magicians to join him is raising awareness of Parkinson's and fundraise for PD research. His organization is called Slow Motion Magic, and his book and fundraiser is called Conjuring for a Cure. This is an inspirational, positive story you don't want to miss. Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson's disease at https://DBSandMe.com/17branches  https://www.amazon.com/s?k=conjuring+for+a+cure&crid=4BAMLO9ZLUWQ&sprefix=conjuring+for+%2Caps%2C229&ref=nb_sb_ss_p13n-expert-pd-ops-ranker_1_14 https://slowmotionmagic.org/   
    --------  
    22:24
  • 123 Fall Prevention and Safety
    September is Fall Prevention month. As we age, falling—or even the fear of falling—becomes increasingly common. For people with Parkinson's, the risk is often higher due to specific changes in the body that affect balance, strength, and coordination. Almost all of us will experience a fall at some point, which is why it's so important to understand your abilities, recognize your tendencies, and keep open communication with your neurologist and care team. The good news is that there are effective ways to improve balance, manage dizziness, and build strength. Prevention truly is key. Today, I have two special guests joining me: ·       Dr. Ospina, a Movement Disorder Specialist (MDS), who explains why people with Parkinson's are more likely to face fall risks as part of the disease process—and what's happening in the body that leads to falls. She also shares strategies and treatments that can help reduce those risks. ·       A home safety expert, whose company evaluates living spaces and provides personalized recommendations to make your home safer. Their process is clinically guided, ensuring that the solutions fit your individual needs. This service is incredibly valuable for anyone looking to prevent falls at home. As we recognize Fall Prevention Month, I'd love to hear from you. Do you have a personal story about a fall, or tips you've used to reduce your ownl risk? Please share your experiences in the comments section or email at [email protected].  Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson's disease at https://DBSandMe.com/17branches  https://www.dbsandme.com/17branches  https://measurabilities.com/ https://www.cdc.gov/falls/about/index.html    
    --------  
    29:33
  • 122 PPMI - How You Can Help Find a Cure
    I've been eager to share with all of you in podcast land some important information and history about what I believe is one of the key drivers in helping fulfill the Michael J. Fox Foundation's mission to cure Parkinson's disease. The Parkinson's Progression Markers Initiative (PPMI), launched in 2010, is a groundbreaking study involving people both with and without Parkinson's. It gathers data over time to help researchers better understand how Parkinson's starts, how it progresses, and — most importantly — how to stop it. Sound important? It absolutely is. And it's still going strong, continually recruiting new participants to join its large and growing community of volunteers. The more data we collect through PPMI, the faster we can accelerate the path to a cure. Maggie Kuhl and Alyssa O'Grady are at the heart of this effort — overseeing the data, bringing in new participants, and tracking the initiative's progress every step of the way. Listen to what the experts say about how you can contribute to the solution to the Parkinson's puzzle. Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson's disease at https://DBSandMe.com/17branches   https://www.michaeljfox.org/ppmi https://www.ppmi-info.org/    
    --------  
    34:51
  • 121 Thriving with Parkinson's
    Listening to personal Parkinson's stories offers valuable insights for everyone. In this episode, we interview Greg Ritscher, who responded to his diagnosis with determination shaped by his business and personal experiences. Greg also shares a notable DBS story. His journey highlights motivation, positivity, community support, and advocacy. Enjoy our inspiring conversation with Greg.  https://gregritscher.com/ https://www.dbsandme.com/17branches Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson's disease at https://DBSandMe.com/17branches   
    --------  
    40:39

More Health & Wellness podcasts

About The Parkinson's Experience podcast

The Parkinson's Experience is a podcast hosted by a Person with Parkinson's (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the few podcasts available on this topic, don't skip this one from the viewpoint of a patient. Thank you to my sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about Parkinson's treatment options, please visit DBSandMe.com
Podcast website

Listen to The Parkinson's Experience podcast, The Mindset Mentor and many other podcasts from around the world with the radio.net app

Get the free radio.net app

  • Stations and podcasts to bookmark
  • Stream via Wi-Fi or Bluetooth
  • Supports Carplay & Android Auto
  • Many other app features
Social
v8.0.7 | © 2007-2025 radio.de GmbH
Generated: 12/7/2025 - 4:45:18 PM