MND Matters

In this powerful episode, host Domonique is joined by Lorraine Redmond, who lives with MND, Emma Wood, a clinical lead dietitian, and Jonathan Phang, a cook and MND Association ambassador. Together, they explore the emotional and practical challenges of eating and drinking with motor neurone disease. The conversation is rich with practical tips - from modifying food textures and using feeding tubes flexibly, to managing social anxiety around eating in public. It’s also a reminder that food is more than fuel - it’s love, culture and togetherness. For more information about eating, drinking and swallowing with MND, see our guide, Eating and drinking with motor neurone disease (MND). You can request a free printed copy from our helpline MND Connect. 

In this episode of MND Matters, Chief Executive Tanya Curry and Director of Engagement Richard Evans reflect on a transformative year for the MND Association. From record-breaking fundraising and expanded grants to bold advocacy and the launch of a research nurse network, Tanya and Richard share how the Association is stepping up with urgency and ambition to focus on delivering more impact, including faster access to emerging treatments, targeted support, and a louder voice for the MND community. 

In this episode of MND Matters, Helen is joined by Tris Dyson from Challenge Works, and the MND Association’s Dr Mike Rogers and Dr Brian Dickie, to explore the groundbreaking £7.5 million Longitude Prize on ALS. This global challenge aims to revolutionise drug discovery for ALS, the most common form of motor neurone disease, by harnessing the power of artificial intelligence. Tris, Mike and Brian discuss how AI-based approaches can transform drug discovery for the treatment of ALS, and accelerate progress towards effective therapies.  Find out more about the prize, or how to enter, by visiting https://als.longitudeprize.org/. 

Eighteen months after announcing his diagnosis of MND, actor and writer Michael Patrick gives us an insight into his starring role in a special adaptation of Shakespeare’s Richard III – in which Richard receives a diagnosis of MND. Alongside friend and creative partner Oisín Kearney, Michael talks about how moments of the play hold up a mirror to his own MND experiences, and the pair give host Domonique a trip down memory lane to relive their past successes, including the award-winning play and BBC3 series, My Left Nut.  

Coronation Street actors Dan and Peter answer your questions in this special episode of MND Matters. Go behind the scenes of Peter’s award-winning portrayal of Corrie character Paul, who was diagnosed with MND in 2023, and hear more about how Dan’s personal connection to the disease influenced playing the role of Paul’s husband and carer, Billy.